Links to MSA/SDS Resources

These links are to other resources that I have collected. Most have been mentioned in the Shy-Drager support group list.

Table of Contents

General Information

Support Groups and Resources

Ataxia and Parkinsons Information

Financial Aid

Social Security

Research and Drugs

Disability Devices and Related Help

Daily Living

General Health and Information

Books

Other Links

General Information

• American Autonomic Society Home Page
• Autonomic Disorders
• Editorial: Autonomic Disorders and Their Recognition
• General Information Brochure on Neurally Mediated Hypotension
• Glossary of Parkinson Terms (Overlaps with MSA/Shy-Drager terms)
• History and Description of Shy-Drager Syndrome
• Multiple System Atrophy (MSA)
• National Center for Biotechnology Information - Shy-Drager Syndrome
• NDRF - National Dysautonomia Research Foundation
• National Institutes of Health Mini Fact Sheet on Shy-Drager Syndrome
• National Oraganization for Rare Disorders, Inc. - Shy Drager Syndrome
• Nervous System Diseases
• Neuroscience Web Search (Try search pattern, "MSA Shy-Drager".)
• Shy-Drager & Parkinson's Page
• University Hospitals of Cleveland: Autonomic Laboratory
• University of Kentucky: Movement Disorders Clinic

Support Groups and Resources

• A Caregiver's Bill of Rights
• Caregiving Online
• Caregiver Survival Resources
• Caregiving Support: AARP
• Family Caregiver Alliance
• National Ataxia Foundation Support Groups
• National Family Caregivers Association (NFCA)
• Worldwide Education and Awarness for Movement Disorders (WEMOVE )
• Sarah Matheson Trust for Multiple System Atrophy

Ataxia and Parkinsons Information

• About Hereditary Ataxias and Euro-Ataxia
• Associazione Italiana per la lotta alle Sindromi Atassiche (Italy)
• Ataxia Classifications
• Ataxia - Richard Doonan's Home Page
• Ataxia Northwest
• Barbara Patterson's Homepage (What we would like our professional health care providers to know...)
• Friedreich's Ataxia Information
• International Network of Ataxia Friends
• Medical Sciences Bullietin: Parkinson's Disease and Sleep Disorders
• National Ataxia Foundation
• The National Parkinson Foundation, Inc.
• Olivopontocerebellar Atrophy
• Progressive Supranuclear Palsy
• Progressive Supranuclear Palsy Fact Sheet
• University of Michigan Medical Center, Ataxia Clinic

Financial Aid

• Applying for Social Security Disability Insurance (SSDI)
• Free Prescription Drugs: Pharmaceutical Manufacturers' Drug Assistance Programs
• Health Care Financing Administration (HCFA)
• Needy Meds: Pharmaceutical Manufacturers' Drug Assistance Programs

Social Security

• Social Security Administration: Disability Information
• Social Security Administration: Social Security Disability Benefits
• Social Security Disability Frequently Asked Questions
• Social Security Disability, Medicare and Medicaid Sites
• The Social Security Disability Process Explained
• Social Security: What You Need To Know When You Get Disability Benefits

Research and Drugs

• Amantadine (Symmetrel)
• Clinical Trials Listing Service
• Dopamine Receptor Agonist: Mirapex (pramipexole)
• DMSO
• GPI-1046 - Nerve Growth (Abstract from the Proceedings of the National Academy of Sciences)
• GPI-1046 - Nerve Growth (Press Release)
• Healthtouch Online Drug Information
• Midodrine for Neurogenic Orthostatic Hypotension
• Midodrine (ProAmitine)
• NIH Researchers Find First Parkinson's Disease Gene
• Pneumonia Prevention: Facts for Patients About Pneumococcal Disease
• Pramipexole (Mirapex) Cleared for Marketing
• Reference Guide for Vitamins
• RxList - The Internet Drug Index
• Sinemet (Carbidopa; Levodopa)
• Symmetrel (amantadine)
• What Is the Accuracy of the Clinical Diagnosis of Multiple System Atrophy? [A Clinicopathologic Study]

Disability Devices and Related Help

• Abilities Expo
• Aaccess-Ability Inc.
• Access-Able Trave Source
• Apple Computer Disability Resources
• Assistive Technology Web Report
• Augmentative Communication Devices
• The Boulevard (Information on products/services for the disabled)
• CindyLift Products
• The Disability Equitpment Register (UK)
• Dis-Abilities Online
• Ex n' Flex Pasive/Active Exercise for Disabled (Bicycle pedals on the floor)
• Golden Technologies (Chairs, Beds, Scooters)
• Manufacturers of Electronic Communication Aids
• Microsoft Accessibility and Disabilities Site
• National Institute on Disability and Rehabilitation Research: ABLEDATA database
• New Mobility Interactive Cafe
• Neuromuscular Disease Database (UC Davis)
• Norma's Independence and Disability Equipment Classifieds (Canada and Northern US)
• Oklahoma ABLE Tech
• Paragon Lift System
• Pride Brand Scooters, Lift Chairs and Jazzy Power Chairs
• Solutions for People with Disabilities and Chronic Health Conditions

Daily Living

• Bowel Incontinence
• Clinical Depression or Physical Disorder? - Symptoms, Diagnosis and Treatment
• Diarrhea
• Dysphagia - Difficulty in Swallowing
• Feeding Tube
• G-Tube
• Impotence Resources
• Intermittent Catheterization
• Managing Bowel Dysfunction: A Patient Education Pamphlet
• Non-Chew CookBook
• Patient Information Sheet On Reflux
• Urinary Incontinence
• Sleep Apnea
• Sleep Medicine Home Page

General Health and Information

• Martindale's Health Science Guide - 1999
• Your Health Daily

Books

• Autonomic Failure: A Textbook of Clinical Disorders of the Autonomic Nervous System
• Clinical Autonomic Disorders: Evaluation and Management

Other Links

• Case of the Month (A test for students taking neurology)
• Detroit News: A Gentle Good-Bye
• Dictionary of Medical Terms
• Explore the Brain and Spinal Cord
• The Harvard Brain Tissue Resource Center
• Medical Help International (See "The Cleveland Clinic Neurology & Neurosugery Forum" link in particular)
• Medical Product Manufacturers/Suppliers (Comprehensive index)
• Medscape
• MGH Neurology - Neurology Web-Forum
• National Dysautonomia Research Foundation: Physician and Medical Facility Listing
• Neuro-Genesis, Inc. Home Page
• The Orphan Drug Act FAQ